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Form 990-PFTax year 2022EIN 45-3132103

The Rare Disease Charitable Foundation

A private foundation in Lexington, MA. Its return for tax year 2022 lists 1 grant and $171.3 million paid in grants.

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Tax year 2022 (period ending Dec 31, 2022), read from the IRS e-file on Nov 11, 2026. Returns reach the IRS 5 to 18 months after the year they describe.

How to apply

Preselected only

The return checks the box saying the foundation gives only to preselected organizations and does not accept unsolicited requests.

Assets and giving by year

2 returns on file
Grants paid by tax year. The latest year is in blue.

  • Tax year 2022

    $171,314,161

    Grants listed
    1
    Assets, end of year
    $0

  • Tax year 2021

    $157,205,783

    Grants listed
    1
    Assets, end of year
    $20,024,953

Grants paid in 2022

1 grant, largest first

As listed on the return. Grants to individuals show as “Individual”, with purpose and amount only.

  1. Individual

    Pharmaceutical products to people

    $171,314,161

Officers, directors and trustees

4 people as filed

As filed on the return, with average hours per week and pay from the foundation.

  • Karen ShahinianChair Hours 0Pay $0
  • Janeen BlakeVice Chair Hours 0Pay $0
  • Ryan McCarthySecretary Hours 0Pay $0
  • Michael RiffittsMember Hours 0Pay $0

The return

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