The Teton Range reflected in a lake in Grand Teton National Park, Wyoming
Foundation Lookup

Form 990-PFTax year 2024EIN 01-0759380

Spinal Muscular Atrophy Foundation

A private foundation in Jackson, WY. Its return for tax year 2024 lists 11 grants and $1.5 million paid in grants.

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Tax year 2024 (period ending Dec 31, 2024), read from the IRS e-file on Nov 11, 2026. Returns reach the IRS 5 to 18 months after the year they describe.

How to apply

Preselected only

The return checks the box saying the foundation gives only to preselected organizations and does not accept unsolicited requests.

Assets and giving by year

7 returns on file
Grants paid by tax year. The latest year is in blue.

  • Tax year 2024

    $1,491,789

    Grants listed
    11
    Assets, end of year
    $50,173,258

  • Tax year 2023

    $1,155,632

    Grants listed
    9
    Assets, end of year
    $33,691,989

  • Tax year 2022

    $653,689

    Grants listed
    1
    Assets, end of year
    $24,079,888

  • Tax year 2021

    $597,641

    Grants listed
    4
    Assets, end of year
    $2,033,752

  • Tax year 2020

    $326,352

    Grants listed
    4
    Assets, end of year
    $3,647,681

  • Tax year 2019

    $402,878

    Grants listed
    3
    Assets, end of year
    $1,535,980

  • Tax year 2018

    $2,161,805

    Grants listed
    8
    Assets, end of year
    $3,030,276

Grants paid in 2024

11 grants, largest first

As listed on the return.

  1. John Hopkins UniversityBaltimore, MD

    Characterization of gene expression in motor neurons in sma

    $238,814
  2. Swiss Federal Technology Institute of LausanneSwitzerland

    Testing of mitochondrial modulators in sma models

    $218,006
  3. Stanford UniversityPalo Alto, CA

    Generation of spinal cord motor neurons from pluripotent cells

    $207,000
  4. University of FloridaGainesville, FL

    Characterization of muscle environment in sma

    $197,907
  5. Stanford UniversityPalo Alto, CA

    Oversight on the stanford-sma foundation regenerative medicine program projects

    $167,825
  6. University of EdinburghUnited Kingdom

    Characterization of neuromuscular junctions in sma

    $141,212
  7. Stanford UniversityPalo Alto, CA

    Characterization of neuron-glial-immune cell interactions in sma

    $117,494
  8. Boston Children's HospitalBoston, MA

    Testing therapeutics that promote neuron growth in sma models

    $98,571
  9. Stanford UniversityPalo Alto, CA

    Characterization of muscle in sma patients

    $69,000
  10. Stanford UniversityPalo Alto, CA

    Development of noninvasive gene editing methods

    $33,460
  11. Muscular Distrophy AssociationChicago, IL

    Support of muscle regeneration summit with key muscle experts

    $2,500

Approved for future payment

10 grants

Approved in 2024 and not yet paid.

  1. Harvard UniversityCambridge, MA

    Testing satellite cell replacement in sma models

    $690,000
  2. Harvard UniversityCambridge, MA

    Development of biomaterials to regenerate muscle and motor neurons

    $690,000
  3. Stanford UniversityPalo Alto, CA

    Characterization of neuron-glial-immune cell interactions in sma

    $653,281
  4. Boston Children's HospitalBoston, MA

    Testing therapeutics that promote neuron growth in sma models

    $591,429
  5. Stanford UniversityPalo Alto, CA

    Oversight on the stanford-sma foundation regenerative medicine program projects

    $350,903
  6. University of EdinburghUnited Kingdom

    Characterization of neuromuscular junctions in sma

    $333,776
  7. John Hopkins UniversityBaltimore, MD

    Characterization of gene expression in motor neurons in sma

    $238,814
  8. Swiss Federal Technology Institute of LausanneSwitzerland

    Testing of mitochondrial modulators in sma models

    $106,002
  9. University of FloridaGainesville, FL

    Characterization of muscle environment in sma

    $98,953
  10. University of PittsburghPittsburgh, PA

    Testing effects of spinal cord stimulation in sma patients

    $58,472

Where the money goes

By cause: grants to organizations we matched to the IRS list of exempt organizations, by their category.

  1. Health1 grant $98,571100% of the total

By State

Grants to organizations with a US address, latest year.

  1. California5 grants $594,779
  2. Maryland1 grant $238,814
  3. Florida1 grant $197,907
  4. Massachusetts1 grant $98,571
  5. Illinois1 grant $2,500

Officers, directors and trustees

11 people as filed

As filed on the return, with average hours per week and pay from the foundation.

  • Dinakar SinghBOARD CHAIRMAN Hours 1Pay $0
  • Douglas Cole MDDIRECTOR Hours 1Pay $0
  • Gerald Fischbach MDDIRECTOR Hours 1Pay $0
  • Andrew KnightDIRECTOR Hours 1Pay $0
  • Jonathan LeffDIRECTOR Hours 1Pay $0
  • Helen MeatesDIRECTOR Hours 1Pay $0
  • Stephen Mikita EsqDIRECTOR Hours 1Pay $0
  • Juli Oh EsqTREASURER Hours 1Pay $0
  • Simon Prisk EsqDIRECTOR Hours 1Pay $0
  • Story LandisDIRECTOR Hours 1Pay $0
  • Loren EngPRESIDENT Hours 15Pay $0

The return

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